View Full Version : Organ transplants?
07-23-2008, 04:17 PM
I'm curious about them as it was mentioned for me (lungs) and I'd like to know if anyone on here has been through it. I'm just starting my research and will certainly look everywhere I can. It's not currently an emergency but it has been brought up as a later possibility. /ubbthreads/images/%%GRAEMLIN_URL%%/frown.gif
I thought just maybe if someone here had been through it they could inform me a bit. I'm not looking for all the sunny stories either, reality may suck but I'd like to know anyway.
07-25-2008, 05:52 PM
wow that would be amazing if they could give you a lung transpant, I didn't know they could do that!
07-25-2008, 10:24 PM
ya I had a teachers whose sibling got a double lung transplant done in london i believe
07-26-2008, 03:53 AM
Your not even on oxygen yet are you?? So that seems like it would be far away, either way still scary!
My grandma is currently going thru all the stuff to get this done. She just needs to get one more test done locally(heart test, to see if its strong enough) and then a 6/8 week rehab in either Sudbury or Toronto. And, then she will figure out if her heart is strong enough. Then they will let her know and wait for the lungs.
She's also going for a double lung transplant. She has like, 10percent of one lung, and about 40 of the other left.
Hopefully within the next 6 months she will be going through it.
My grammy waited an extra 4 years to get on Oxygen, because of her dumb [censored] doctor. So, her lungs worsened x 100. And, now hes [censored] her around with that heart test, that was supposed to be done 4 months ago.
She has I think about a year to live. Hopefully with the lungs she can have up to 3 more years. IF she doesn't go on the table.
It's all very stressful.
You have to have a support system, for sure. Its very very stressful. She'll wake up at 3am, wondering if she'll make it through it.. and she hasn't even been confirmed for it yet. Its nuts. Its takes a toll on the family too. I'm still in highschool right now. And, I have to go down there with her and take care of her and my grandpa. My grandpa is in MAJOR denial right now. He told her hes not moving, and he doesn't want her to do this. He's scared shes going to die. Its very very scary..
If you'd like to know anything else, pm me.. I'll talk to her(my grams) if your interested and see if I could forward her email to you?
07-26-2008, 12:22 PM
Apparently my lungs are going downhill pretty quickly. I've already lost part of one and the scar tissue is pretty bad in both lungs so it's really reducing my capacity. It is an ongoing disease so there really is no stopping it unfortunately. It can be controlled but that doesn't last forever. I can't walk up stairs very well and am unable to sleep laying down still, it's been over 5 years since I could lay down without worrying.
We're currently on a mission to try to regain some of the capacity if we can get the swelling down again. The doctor said the meds may work but I still have to go through a whole bunch of tests first to see if they are usable for me.
No I'm not on oxygen and couldn't work if I was and I'm not about to give up working. That would certainly be the end of me, I'd suffer severe depression and probably die, not kidding either.
I'd like to know your Grandmothers situation a little bit more Kittie because I don't know if all situations are the same. My heart is strong but I have such a strange situation that I don't know how they'd figure it out for me.
07-28-2008, 07:55 PM
well my cousin is currently in toronto now awaiting a new set of lungs due to CF. He was put on the waiting list on i believe the 20th or 23rd of June and we are still waiting for new lungs to come through for him.
I had a family member who had a kidney transplant. She had to wait about 8 months before she received her call. She had to be assessed physically and mentally before she could go on the "list". Once she had her transplant we thought that everything would be smooth sailing after that, but we were wrong. She was always at risk of "rejecting" and it did happen a few years later. She survived that episode. The anti-rejection drugs that you are put on after transplant are pretty potent and have some nasty side effects. Your immune system is purposely lowered with the drugs and you have to be very careful of picking up any kind of colds or viruses that are floating around. She survived another ten years and made good use of them. She was never sorry that she underwent the transplant.
My cousin's granddaughter had a heart transplant a year ago. She was on the list 6 hours before the surgery. She is now 15 months old the only difference between her and others of her age is the scar and the anti-rejection drugs. She is doing wonderfully. I hope that you will do so well.
I have worked with kids who have different organs transplanted some who have done very well and others who have done well. I know of a woman who had a lung transplant but she also had a heart transplant at the same time. I hear she is doing great, she able to return to work, got married and now enjoys life.
I believe that there is an organ transplant group in town they could be helpful. Everything related to transplant surgery has improved greatly.
They are advancing in leaps and bounds..
08-10-2008, 08:10 PM
oh but i wonder if they can do liver or pancreas transplants?
08-10-2008, 09:20 PM
hey this is where cloning of cells comes into effect, to replace bodily organs and repelenish body cells
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