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    Senior Member bluekrissyspikes's Avatar
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    Default heart problem in kid

    my step-son has recently added heart problems to his seemingly never ending list of issues.... first we brought him to his doc who made it seem like no biggy, didn't order any tests or anything just said his heart is beating fast. after about a week of not feeling any better we took him to the walk in clinic and the doctor there ordered some tests and gave us more specific information(he has an extra beat in there and and arrythmia as well as going much faster than it should be), and told us that it is probably the result of medication he's been taking for the last year for mental health issues, risperidone. so he said to wean him off and wait and see what we find out from the tests. we were also told to take him off his ritalin. so done and done. the kid is going through withdrawls right now and having a rough time. he is not showing any signs of improvement with his heart that i can tell. today is other doctor says NOT to take him off the medication and that is not what is causing the problem and i'm thinking, how does he know? how can he tell over the phone? one doctor is obviously wrong. so if it was your kid which doctor would you listen to? i have pretty much made up my mind for now, i am just looking for other peoples opinions to sort of verify if my choice is the right thing to do or not. and yes, we had good reason to start him on the medications and they were helping and when all is said and done he is likely to be medicated again in the future.
    i'm also wondering if anyone else has gone through this and if it resolved itself after going off the medications. after reading up on online i can't find anything to help me figure out what's going to happen.
    Last edited by bluekrissyspikes; 05-19-2011 at 02:46 AM.
    "Why do people say grow some balls? Balls are weak and sensitive. If you really wanna get tough, grow a v****a... Those things take a pounding." -- Betty White..

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    Banned HDV's Avatar
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    Default Re: heart problem in kid

    Is Ritalin not pretty much speed?.. that is enough to make anyones heart race. But on a serious note, my cousin's daughter was on Ritalin between the ages of 9-12. They were the blue ones, I know this because i had her for a week and had to give her meds to her. I remember my cousin saying something about how it would make her heart race. She took her off of it and she was back to normal. (her heart) It was making her tired, zombie like. I personally and this is just my opinion, do not believe in medicating little kids with medications like Ritalin. Its makes the recipient all zombie like, duh like..you know. But i guess some kids really do need it. i would personally go with what the doctor said about weening him off. Dont stop the Ritalin all together that can cause serious withdraws but ween him off slowly.

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    Default Re: heart problem in kid

    I don't agree with HDV it doesn't always make the child zombie like, it depends on dose and the child and the type of medication. But on the original statement I would listen to the doc that said to ween him off. If it is the medication causing this it can cause major problems and if it isn't the medication you can always restart it, I know in the mean time the behaviours can be difficult but you will manage but that is how I look at it. I truley hope you get this figured out. Hopefully they run a lot more tests and figure out what is going on.
    MagicFingers

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    Senior Member bluekrissyspikes's Avatar
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    Default Re: heart problem in kid

    Quote Originally Posted by HDV View Post
    Is Ritalin not pretty much speed?.. that is enough to make anyones heart race. But on a serious note, my cousin's daughter was on Ritalin between the ages of 9-12. They were the blue ones, I know this because i had her for a week and had to give her meds to her. I remember my cousin saying something about how it would make her heart race. She took her off of it and she was back to normal. (her heart) It was making her tired, zombie like. I personally and this is just my opinion, do not believe in medicating little kids with medications like Ritalin. Its makes the recipient all zombie like, duh like..you know. But i guess some kids really do need it. i would personally go with what the doctor said about weening him off. Dont stop the Ritalin all together that can cause serious withdraws but ween him off slowly.
    my little guy was not zombied out at all. in fact he was still crazy hyper. he was on just enough to help him sit down in class for short periods between activities they give him because of his excess energy. it also helped him to stop attacking his 'friends'. some people over do the medication because the doctors give them extra to make it easier. i am not one of those people. i'm glad your cousin stopped over dosing her child and i hope that my kids heart goes back to normal soon like that one's did. i also have a cousin who was put on an over-dose of ritalin but that is how they used to do it, start them off on a high dose and lower it until the person can somewhat function. now they start them on a minute amount and increase slowly until you get the results you want, which for us was just enough to get him able to participate in class somewhat.

    Quote Originally Posted by MagicFingers View Post
    I don't agree with HDV it doesn't always make the child zombie like, it depends on dose and the child and the type of medication. But on the original statement I would listen to the doc that said to ween him off. If it is the medication causing this it can cause major problems and if it isn't the medication you can always restart it, I know in the mean time the behaviours can be difficult but you will manage but that is how I look at it. I truley hope you get this figured out. Hopefully they run a lot more tests and figure out what is going on.
    yes, we will manage the behaviours. it takes some time to get the meds out of his system so it will take a couple weeks before he gets to his pre-medication state. so far so good, i suppose. thanks for your reply.
    "Why do people say grow some balls? Balls are weak and sensitive. If you really wanna get tough, grow a v****a... Those things take a pounding." -- Betty White..

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    Senior Member MaO3's Avatar
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    Default Re: heart problem in kid

    Did they actually give you a name for the issues with his heart? I'm asking because I have a condition called Premature Ventricular Contraction. It causes my heart to beat at the wrong times and then it must catch up. They no idea what caused it as I"ve never been on any kind of medication prior to diagnosis except for two courses of anti-biotics in the years before.
    My "condition" as its called is considered benign. In other words it wont' hurt me, or harm me or kill me - at least not at this point in my life. They did tell me that somewhere down the road probably not before I hit 60 or so - I'll need a pacemaker to keep my heart beat semi regular, otherwise I just live with it.

    So perhaps its not something terribly terribly serious?
    As for the two different doc's and two different opinions - Ask to see a Cardiologist - and get an EXPERT opinion.
    Just Mine though - opinion I mean.
    Last edited by MaO3; 05-19-2011 at 10:05 PM.
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    Senior Member bluekrissyspikes's Avatar
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    Default Re: heart problem in kid

    Quote Originally Posted by MaO3 View Post
    Did they actually give you a name for the issues with his heart? I'm asking because I have a condition called Premature Ventricular Contraction. It causes my heart to beat at the wrong times and then it must catch up. They no idea what caused it as I"ve never been on any kind of medication prior to diagnosis except for two courses of anti-biotics in the years before.
    My "condition" as its called is considered Begnine. In other words it wont' hurt me, or harm me or kill me - at least not at this point in my life. They did tell me that somewhere down the road probably not before I hit 60 or so - I'll need a pacemaker to keep my heart beat semi regular, otherwise I just live with it.

    So perhaps its not something terribly terribly serious?
    As for the two different doc's and two different opinions - Ask to see a Cardiologist - and get an EXPERT opinion.
    Just Mine though - opinion I mean.
    thanks for the info. i am hoping it is not serious. they haven't said anything yet as to what it might be or if it's serious or not because they are waiting for the test results.
    "Why do people say grow some balls? Balls are weak and sensitive. If you really wanna get tough, grow a v****a... Those things take a pounding." -- Betty White..

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    Senior Member Luv'inLife's Avatar
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    Default Re: heart problem in kid

    kids on drugs...yay
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    Senior Member bluekrissyspikes's Avatar
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    Default Re: heart problem in kid

    Quote Originally Posted by Luv'inLife View Post
    kids on drugs...yay
    if you had to look after him you'd understand why. i know alot of kids are medicated for being hyper which don't really need it. others are completely off-balanced and have real mental health issues that need to be dealt with. beleive me, i was against medicating kids before and sat there judging the parents like you are doing to me right now. it's hard to imagine if you haven't been through it. so please keep your comments to yourself. i already feel bad that he is sick now.
    "Why do people say grow some balls? Balls are weak and sensitive. If you really wanna get tough, grow a v****a... Those things take a pounding." -- Betty White..

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    Senior Member Luv'inLife's Avatar
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    Default Re: heart problem in kid

    Quote Originally Posted by bluekrissyspikes View Post
    if you had to look after him you'd understand why. i know alot of kids are medicated for being hyper which don't really need it. others are completely off-balanced and have real mental health issues that need to be dealt with. beleive me, i was against medicating kids before and sat there judging the parents like you are doing to me right now. it's hard to imagine if you haven't been through it. so please keep your comments to yourself. i already feel bad that he is sick now.
    I have been there, I happen to have 2 children that were "identified" and it was recommended that they be put on drugs...I chose to teach them to deal with there issues instead of drugging them...I do hope he is o.k. and the effect is not long term.
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    Senior Member bluekrissyspikes's Avatar
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    Default Re: heart problem in kid

    some kids are more difficult than others. this child in particular was not just misbehaving. he was making himself absolutely miserable and pretty much anyone else around him unhappy too. he has horrible violent tendancies and was injuring himself to the point of needing to be taken to the hospital. he also tried to kill my youngest son. on top of that there was no teaching him anything because he was in constant meltdown mode and pretty much if he was awake, he was screaming. it's not that he was 'identified' he is not well. again, you don't understand the severity of the problems we have gone through with him. i have two other kids that are aspies(12 and 4) that don't need medication even though it has been suggested and the school has asked us to medicate them. the meds i gave him were our last ditch attempt to not have him put into a grouphome. he was also not allowed to go to school because he was too dangerous to the other kids and himself. he was smashing windows with his head and basically destroying everything he touched to the point where our family members could not even handle him long enough to come by for a quick visit. as i said before, there is a difference between a kid who actually needs medication because of mental health reasons and just putting a kid on meds to make them listen. it's okay that you don't understand, even if you think you do. i wouldn't expect anyone to understand that hasn't had a child like this. most people don't realize it can get this bad.
    Last edited by bluekrissyspikes; 05-19-2011 at 11:30 PM.
    "Why do people say grow some balls? Balls are weak and sensitive. If you really wanna get tough, grow a v****a... Those things take a pounding." -- Betty White..

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    Senior Member Luv'inLife's Avatar
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    Default Re: heart problem in kid

    I have a brother exactly like him...so I do understand, my Mom took him to a specialist in Toronto [1974] and had him properly diagnosed, and treated...and yes some kids do need meds but personally unless its someone outside of this backwards town that recommends it, I would not do it...like I said before I sure hope the damage is not longterm [and good luck to him and you in the future]
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    Senior Member Dragonfly's Avatar
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    Default Re: heart problem in kid

    Drugs do have a myriad of potential issues, stunted growth, heart problems, zombification (yes I realize that is not a medical term lol) and many others. Unfortunately, especially where there is dual diagnosis, which there is in the case drugs are sometimes the only option. I know this sounds stupid but I would take him to yet another doctor and see what they say because they may agree with one doctor or the other and then giving you a best 2 out of 3 kind of scenario.
    My advice to you is get married: if you find a good wife you'll be happy; if not, you'll become a philosopher. - Socrates

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    Senior Member bluekrissyspikes's Avatar
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    Default Re: heart problem in kid

    that's a good idea, Dragonfly. he actually hasn't had the zombied out or growth problems like most kids get. he grew quite alot since he started his meds because he was actually sleeping at night instead of rocking all night and more of his dinner was getting to his mouth where before alot of it ended up being thrown or dumped out or just plain refusing it because it wasn't cake or whatever.
    not sure how long he can continue school without his meds. he had to leave yesterday after threatening to cut his EA's head off and wasn't allowed in class because of his disruptiveness. if we don't hear back from them on monday we will take him in for another opinion.
    "Why do people say grow some balls? Balls are weak and sensitive. If you really wanna get tough, grow a v****a... Those things take a pounding." -- Betty White..

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    Senior Member Dragonfly's Avatar
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    Default Re: heart problem in kid

    Ya, I would. It would be detrimental to him in many ways, socially, emotionally, educationally etc. if he doesn't get himself regulated again but then again if the pills are causing the heart problems the poor kids overall health is at risk You are between a rock and hard place. I feel for both of you.
    My advice to you is get married: if you find a good wife you'll be happy; if not, you'll become a philosopher. - Socrates

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    Default Re: heart problem in kid

    In 1998, my 15 year old son was complaining of always being tired. We took him to our doctor who happened to be out of town, so a replacement doctor was available. This doctor detected a heart mummer which had been missed by several other doctors over a period of several years. After further testing, it was discovered my son had an enlarged heart due to two leaks in the chambers and a faulty valve from a birth defect. Doctors said had it not been detected (by a substitute doctor), he would be dead by age 25. At 16 years of age, he had open heart surgery at Toronto's Sick Kids Hospital. It was a trying time, but he came out of it with flying colors and is now 29 years old enjoying a prosperous life.

    I would suggest you have your kid see a specialist for peace of mind. That is why we pay the big taxes. Dr. Mathur at the GHC is who looked after us, .... great doctor!
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    Senior Member bluekrissyspikes's Avatar
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    Default Re: heart problem in kid

    wow. that was pretty lucky. and thanks for the doc's name. i will see if i can get in with him.
    "Why do people say grow some balls? Balls are weak and sensitive. If you really wanna get tough, grow a v****a... Those things take a pounding." -- Betty White..

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    Senior Member tippikitty's Avatar
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    Default Re: heart problem in kid

    Just putting it out there......
    Ritalin is not just used for ADD ADHD etc. or just for kids. As for making children "zombies" is also not correct. As HDV said... It's pretty much speed.
    I take Ritalin every day...3 times a day as a matter of fact. I take it for CFS (chronic fatigue syndrome) which is a result from the type of Leukemia I have. If I didn't take it, I would sleep all day and night because my body is constantly fighting off infection. So I am always tired. It is also used for people that have narcolepsy.
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    Default Re: heart problem in kid

    Silly question, but have you look at using nutrition therapy? I have two very "energetic" boys, and I find when we stick to eating things that just grow out of the ground, they are tolerable. When we eat all kinds of wheat products, processed foods, canned soups and other foods containing MSG, and items with food colouring, preservatives, sweeteners or too much sugar, they are just little wildebeasts. Some kids are way sensitive to food additives. We eat just what grows out of the ground Monday through Friday, and there is a marked diference in behavior, tolerance and attention span on the weekends when we eat what we want. :O Plus, we all feel like crap on the weekends, but someohw the pizza and baking still wins out most times.
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    Senior Member bluekrissyspikes's Avatar
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    Default Re: heart problem in kid

    we have tried eliminating things from his diet but not all at once. he will try almost anything but he has texture issues with alot of veggies and won't eat meat so what we did was eliminate say, food colouring for a while and no improvement so we tried white bread/rice/stuff like that. that was before we tried him on medication. so far he is still having a hard time being unmedicated.

    last night he did not sleep at all and my 12yo decided to babysit him all night so he wouldn't get in trouble. they were unbeleivably quiet but that's besides the point. she also has aspergers so she seems to be more understanding of his disabilities and he reacts better for her...... we got the payback today though for him staying up all night. he seems to do alot better at home than at school or with grandparents. i guess we are just used to it, i know he is being difficult but i am getting to be numb to it at the moment because it is just something that is a part of our daily life. other people don't cope so well with it and so he is having a really hard time at school right now. still haven't heard from anyone or been able to get a hold of anyone about his test results. the lab says they sent them out early last week but somehow noone else seems to have them..... hopefully tomorrow.

    if he does have to stay off his medication we are moving to a place where he will likely be attending a special ed school where they have therapists and things on hand and will be able to try out different techniques with him and hopefully find something he that is calming for him.

    in the mean time i have ordered him two shirts...... one says "i'm not naughty, i'm autistic so please be patient with me" and the other one says "if you keep staring at us you might just cure my autism" on both the front and back. hopefully these will help curb some of the problems we have with people glaring in public or commenting on my parenting skills/critisizing how i handle things when they don't know why i'm doing it that way. this doesn't really help him but it will help how people react to him/us and hopefully make it easier on me and dad.
    "Why do people say grow some balls? Balls are weak and sensitive. If you really wanna get tough, grow a v****a... Those things take a pounding." -- Betty White..

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    Senior Member Dragonfly's Avatar
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    Default Re: heart problem in kid

    Quote Originally Posted by bluekrissyspikes View Post
    in the mean time i have ordered him two shirts...... one says "i'm not naughty, i'm autistic so please be patient with me" and the other one says "if you keep staring at us you might just cure my autism" on both the front and back. hopefully these will help curb some of the problems we have with people glaring in public or commenting on my parenting skills/critisizing how i handle things when they don't know why i'm doing it that way. this doesn't really help him but it will help how people react to him/us and hopefully make it easier on me and dad.
    That is fantastic! I worked in a special needs class for a while and it is amazing how many people are completely intolerant of disabilities. Even when the children were quite obviously disabled in some capacity people just could not tolerate "misbehaviour" even though the children were not doing it on purpose. I wish we could have had some of those shirts!
    My advice to you is get married: if you find a good wife you'll be happy; if not, you'll become a philosopher. - Socrates

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